Sudden Death in the Young Case Registry

The SUID (Sudden Unexpected Infant Death) and SDY (Sudden Death in the Young) Case Registry gathers information about young people who die suddenly and unexpectedly. Babies, children, and young adults up to age 20 are included in the SUID and SDY Case Registry. It has been hard for death investigators to find the causes for many sudden deaths in young people. It has also been challenging for public health agencies to count the actual numbers of these deaths. This means that doctors, scientists, and families do not understand how often these deaths happen and what causes them, making it more difficult to prevent more deaths like these. The SUID and SDY Case Registry will gather and store information about sudden child deaths to help:

Count the number and types of sudden deaths in babies, children, and young adults up to age 20

Try to understand the causes for the deaths

See if some children are more at risk of dying than others

Find ways to prevent these deaths