Resources for Families

SUID/SIDS:

Heart:

Epilepsy:

California

If heart disease is identified or death remains unexplained:

NEW Indiana

If heart disease is identified or death remains unexplained:

NEW Michigan

If heart disease is identified or death remains unexplained:

  • C.S. Mott Children’s Hospital – University of Michigan Congenital Heart Center, 734-764-5176
  • Children’s Hospital of Michigan Cardiology, 313-652-1305
  • Spectrum Health Cardiovascular Medicine, 616-885-5000 (Adult)
  • Helen DeVos Children’s Hospital HDVCH Inherited Arrhythmia and Cardiogenetics Program, 616-267-9150 (Pediatrics)
  • University of Michigan at Grand Rapids, 616-252-5970
  • Bronson Pediatric Cardiology, 269-341-8786

If the child has epilepsy or history of seizures:

  • University of Michigan Neurology, 734-936-4179
  • Children’s Hospital of Michigan Neurology, 888-362-2500
  • Helen DeVos Children’s Hospital Neurology, 616-267-7600
  • Bronson Pediatric Neurology, 269-341-7654

Minnesota

If heart disease is identified or death remains unexplained:

Nevada

If heart disease is identified or death remains unexplained:

If the child has epilepsy or history of seizures:

NEW New Mexico

If heart disease is identified or death remains unexplained:

  • University of New Mexico Pediatric Cardiology, 505-272-3864

If the child has epilepsy or history of seizures:

  • University of New Mexico Epilepsy Center, 505-272-3160

NEW Pennsylvania

If heart disease is identified or death remains unexplained:

  • St. Christopher’s
    • Heart Center for Children, 215-427-4820
    • Clinical Genetics, 215-427-8413

If the child has epilepsy or history of seizures:

  • Children’s Hospital of Philadelphia (CHOP)
    • Pediatric Epilepsy Program, 215-590-1719
  • St. Christopher’s
    • Epilepsy Center, 215-427-3878

Tennessee

If heart disease is identified or death remains unexplained:

  • Vanderbilt University Medical Center
    • The Center for Inherited Heart Disease, 615-322-7602

If the child has epilepsy or history of seizures:

  • Vanderbilt University Medical Center
    • Vanderbilt Neurological, 615-936-0060

Virginia

If heart disease is identified or death remains unexplained:

  • Children’s Hospital of the King’s Daughters
    • Pediatric Cardiology, 757-668-7214
    • Pediatric Neurology, 757-668-9920

Wisconsin

If heart disease is identified or death remains unexplained: