Resources for Families

SUID/SIDS:

Heart:

Epilepsy:

California

If heart disease is identified as cause of death or if death remains unexplained:

  • University of California San Francisco: San Francisco Postmortem Systematic InvesTigation of Sudden Cardiac Death (POST SCD) Study

        www.cardiology.ucsf.edu/research/programs/post/

  • University of California San Francisco: Inherited Cardiovascular Diseases / Cardiomyopathy / Marfans

       www.cardiology.ucsf.edu/care/clinical/inherited.html

 

Delaware

If heart disease is identified as cause of death or if death remains unexplained:

  • A.I. duPont Hospital

1600 Rockland Rd. Wilmington, DE 19803

302-651-400

If family history of epilepsy contact:

  • Epilepsy Foundation of Delaware

www.epilepsyfoundation.org/delaware

 

Minnesota

If heart disease is identified as cause of death or if death remains unexplained:

  • Minneapolis Heart Institute Genetic Arrhythmia Center

612-775-3905, 1-800-582-5175

        www.allinahealth.org/Minneapolis-Heart-Institute/Programs-and-services/Genetic-Arrhythmia-Center/

  • University of Minnesota Genetic Counseling Services

        www.mhealth.org/care/services/genetic-counseling

 

Nevada

If heart disease is identified as cause of death or if death remains unexplained:

  • Children’s Heart Center Nevada

       www.childrensheartcenter.com

702-732-1290, 775-324-6644

If family history of epilepsy contact:

  • Epilepsy Foundation of Nevada

       www.epilepsy.com/local/nevada

877-467-3496

 

Tennessee

If heart disease is identified as cause of death or if death remains unexplained:

  • Vanderbilt University Medical Center

The Center for Inherited Heart Disease

615-322-7602

If family history of epilepsy contact:

  • Vanderbilt University Medical Center

Vanderbilt Neurological

615-936-0060

 

Virginia

If heart disease is identified as cause of death or if death remains unexplained:

  • Pediatric Cardiology at Children’s Hospital of the King’s Daughters, Norfolk

757-668-7214

  • Pediatric Neurology at Children’s Hospital of the King’s Daughters, Norfolk

757-668-9920

 

Wisconsin

If heart disease is identified as cause of death or if death remains unexplained:

  • Children’s Hospital of Wisconsin, Milwaukee

414-266-2000 or Toll free 877-266-8989

  • Froedtert Hospital, Milwaukee

414-805-3000

  • American Family Children’s Hospital, Madison

608-890-5437

  • University Hospital, Madison

608-263-6400